Evolution of a longitudinal, multidisciplinary, and scalable patient navigation matrix model
This Longitudinal patient navigation Matrix Model was developed to overcome barriers across the cancer care continuum by offering prepatients, patients, and their families with support services. The extraordinary heterogeneity of patient needs during cancer screening, risk assessment, treatment, and survivorship as well as the vast heterogeneity of oncology care settings make it nearly impossible to follow a static navigation model.
The COVID-19 outbreak has greatly impacted cancer patients, their caregivers, and healthcare providers. The American Cancer Society has a number of resources that can help. We stand ready to assist patients throughout their cancer journey, even during these challenging times.
Below are some ways the American Cancer Society is able to support your patients and their caregivers virtually (embedded links below):
NCIC – Our National Cancer Information Center is being staffed 24/7 so that even now families can get answers from a live person wherever they are, no matter what time it is. Our trained cancer information specialists provide accurate, up-to-date information. People may call us by phone (1-800-227-2345) or Live Chat. Approximately 80% of all calls received at NCIC in the last three weeks were related to COVID-19 and cancer, including service requests and questions about health safety.
- Reach To Recovery – We’ve shifted our Reach To Recovery one-on-one support program to completely phone-based, linking new breast cancer patients with survivors who have had a similar diagnosis and treatment plan
Support Group Resources: We have online support resources so those touched by cancer can connect, interact, and find answers in this time of crisis.
- Cancer Survivors Network – Patients and caregivers can find a safe, supportive online connection at csn.cancer.org. There are discussion boards and chat rooms where people can built their own support network.
- Springboard Beyond Cancer – Learn tips to help manage common cancer-related problems and concerns.
Additional ACS Resources
- Cancer.org – Get comprehensive information about cancer risk, prevention, screening, detection, treatment, survivorship, and end-of-life care, and learn how to manage common problems and concerns.
- Personal Health Manager – Track and organize information about a cancer diagnosis and treatment with this helpful tool.
- “tlc” – Tender Loving Care® – Helps women with appearance-related side effects find affordable wigs, hats and scarves, and a full range of mastectomy products.
- Caregiver Video Series – Find support for those giving care to loved ones with cancer, including strategies for self-care as they navigate the caregiver experience.
- Caregiver Resource Guide – A tool for people taking care of someone with cancer.
- American Cancer Society YouTube Channel – View or listen to information about the impact of important ACS work and research.
- Cancer Information Videos – Learn more about cancer and cancer prevention, early detection, treatment, programs and services, and listen to survivors’ stories of hope.
- Patient Navigation – Fifty hospital-based navigators, many working with safety net hospitals around the country, are reaching out to the patients to help them with the resources they require
The American Cancer Society is here to offer hope and support during this COVID-19 pandemic. I have attached a hot off the presses the COVID-19 and Cancer Resources Infographic with embedded links as well.
Patient Navigator Training Collaborative (PNTC)
PNTC has developed a COVID-19 Community Clinic Navigation Toolkit. The new toolkit has a scope of practice for navigators, a sample script for making outreach calls, a glossary of common terms used during the pandemic, and a link to resources.
PNTC is also offering a series of free webinars in April focused on timely topics such as reducing anxiety, ethics and stigma and health care policy in the time of COVID-19.
A weekly “Navigator Virtual Happy Hour” will run Wednesdays in April at 4:30 pm MT and is focused on fun and self-care during these stressful times.Watch this video to hear from PNTC Director Dr. Patricia Valverde about the toolkit and upcoming events.
Patient Advocate Foundation COVID-19 Resources
Beginning on April 1, 2020, Patient Advocate Foundation (PAF) will offer a suite of direct support initiatives for patients, and their families, who are impacted by, or have been diagnosed with, COVID-19. These include:
- The COVID Care Resource Center, an online directory providing an array of resources, FAQs and educational webinars addressing the coronavirus pandemic. This online center will be routinely expanded as important new COVID resources and information becomes available and can be accessed at https://www.patientadvocate.org/covidcare/.
- COVID Care will provide patients with direct support in response to their individual needs with expert help from case managers working to resolve issues related to accessing and paying for medical care and cost-of-living needs, including insurance and transportation costs that have become difficult to manage due to the pandemic. COVID Care is available to any patient or caregiver who has a chronic, life-threatening or debilitating illness and who has been directly or indirectly impacted by COVID-19, as well as those who do not have an underlying health condition but have been hospitalized with COVID-19. The COVID Care team can be reached at 1-800-532-5274, option 0.
- The COVID Care Recovery Fund will deliver $500 in direct financial aid to eligible patients who need non-medical, cost-of-living support as a result of their diagnosis of COVID-19. Patients can access the fund and complete an application for assistance via a secure portal 24/7. https://financialaid.patientadvocate.org/Recovery or through the toll-free hotline at 1-855-824-7941, option 1.
LUNGevity Launches Breathe Easier: An Emergency Response Fund for COVID-19
Lung cancer patients and their families who meet criteria are eligible to receive financial support to cover expenses during public health emergency.
WASHINGTON, DC (March 31, 2020) — LUNGevity Foundation, the nation’s premier lung cancer-focused nonprofit organization, announced today that it is launching Breathe Easier: An Emergency Response Fund to help financially support life challenges for lung cancer patients and their families during the time of the COVID-19 public health emergency.
LUNGevity’s Breathe Easier fund will offer financial assistance to eligible lung cancer patients and their families to satisfy their critical basic needs of food, transportation, and general household bills. Support in the amount of $500 will be provided to eligible patients and their families.
Patients can call LUNGevity’s Lung Cancer HELPLine (844-360-5864), a free phone service in partnership with CancerCare, to learn more and apply for support from the Breathe Easier Fund. To qualify, applicants must meet the following criteria:
- Patients must be in active treatment, or actively pursuing treatment, for lung cancer.
- The patient’s household income does not exceed 300% of the Federal Poverty Level (FPL); however, special consideration will be given to those who are recently unemployed or furloughed as a result of COVID-19.
- Patient must be a US resident and be receiving care for lung cancer in the US.
In addition to the Emergency Fund, LUNGevity’s free support services are available to help people with lung cancer and their families navigate this challenging time. These services include LUNGevity’s HELPLine; LUNGevity LifeLine, a phone-buddy program; LUNGevity’s Lung Cancer Support Community, the largest lung cancer online support network; peer-to-peer mentoring; and LUNGevity’s private Facebook Groups specific to lung cancer patients.
LUNGevity has also developed resources specifically for people affected by lung cancer during the time of COVID-19. A dedicated COVID-19 section of our website is continually being updated to include Q&As with experts, including members of our esteemed Scientific Advisory Board (SAB), answering questions posed by our community, video interviews with members of the SAB and other medical experts, and a COVID-19 glossary. All updates and information as well as expert videos are available on the website in Spanish, and materials are currently being created in Mandarin as well.
About the Lung Cancer HELPLine
Launched in partnership with CancerCare, the LUNGevity Lung Cancer HELPLine is a free phone service staffed by a team of professional oncology social workers who are available to address the emotional, practical, and information needs of people diagnosed with lung cancer, their families, and caregivers. Those seeking assistance can call the toll-free HELPLine at 844-360-5864 from 9:00 am-5:00 pm ET, Monday through Friday.
Founded in 1944, CancerCare is the leading national organization providing free, professional support services and information to help people manage the emotional, practical, and financial challenges of cancer. Our comprehensive services include counseling and support groups over the phone, online, and in-person, educational workshops, publications, and financial and co-payment assistance. All CancerCare services are provided by master’s-prepared oncology social workers and world-leading cancer experts. To learn more, visit www.cancercare.org or call
Cancer Support Community COVID-19 Resources
- Coronavirus Webpage (which is updated every day with new resources and information including direct patient resources as well as policy updates and how that info impacts patients)
- Cancer Support Helpline (which now operates 7 days per week) …We are raising funds for emergency patient assistance for patients under 4x the federal poverty level. Patients can access this by calling our Helpline
- My Life Line which is our digital platform. We have very active discussion boards where patients and caregivers can connect with one another
- Video message from Dr. Jill Biden
- Podcast on what people impacted by cancer need to know about Coronavirus…several other to follow
Academy of Oncology Nurse & Patient Navigators (AONN+)
AONN+ COVID-19 toolkit. https://aonnonline.org/education/navigation-tools#covid-19. AONN+ is aware of the increased acuity of patient care that navigators are managing on a daily basis with patients with cancer and their families so in response, we have provided our professional members with credible resources/information they can use to educate and empower those around them as well as alleviate fears.
Team-Based Oncology Care: The Pivotal Role of Oncology Navigation
The Academy of Oncology Nurse & Patient Navigators resource, Team-Based Oncology Care: The Pivotal Role of Oncology Navigation, edited by Lillie D. Shockney provides assistance for navigators to effectively evolve their understanding of a team approach when aiding in oncology care. Specifically, developing and implementing an oncology navigation program and facets of navigation starting from community outreach to long-term survivorship/end-of-life navigation.
Patient Navigation: Overcoming Barriers to Care
Edited by Elizabeth A. Calhoun and Angelina Esparza, Patient Navigation: Overcoming Barriers to Care focuses on years of research and practical experiences of scientific leaders by emphasizing on the success and results of patient navigation programs. This resource provides a step-by-step guide on the production and enforcement of patient navigation programs within the healthcare system.